We have finalized the arrangements for Larry's memorial service and wanted to post them for any who are interested.
The memorial service will be held on Sunday, April 27th at 3pm at First Wesleyan Church in High Point on Westchester Drive. Cumby Funeral Service on Eastchester Drive in High Point is in charge of the arrangements. Since Larry's wishes were to be cremated instead of a burial, there will be no visitation prior to the service. However, the family will available to visit with friends and family after the service.
We can not begin to express our gratitude for the many comments, cards and various expressions of support for our family during this time. Larry was such a blessed man. We are all so fortunate for sharing our lives with him.
With love,
Terri and family
Friday, April 25, 2008
Thursday, April 24, 2008
It is with much sadness that I post this entry. Larry passed away at 9:30 this evening and it was a very peaceful passage. He is no longer in pain and for that we are so thankful.
Please continue to keep us in your prayers. The upcoming days and months will certainly be difficult as we learn to live without Larry.
With much love,
Terri and family
Please continue to keep us in your prayers. The upcoming days and months will certainly be difficult as we learn to live without Larry.
With much love,
Terri and family
Wednesday, April 23, 2008
The move was made yesterday from the hospital to Hospice Home and it was incredibly painful for Larry. It took nearly 3 hours for them to get his pain under control and they now have him sedated just to keep him comfortable. Larry was able to open his eyes very briefly yesterday to look out the window of his room. I know that he would enjoy it so much if he were awake, but I'm just thankful that he's resting peacefully.
We had a bit of a rough patch around 2:30 this morning when the pain got ahead of the medication and it took nearly 3 hours to get it under control again. It happened again early this afternoon but they were able to get a handle on it much faster, thankfully. Since that time he has been sleeping comfortably.
Unless something extraordinary happens, I believe Larry's days of talking to us are over. I believe he still hears us and I talk to him quite a bit. In fact, tonight I will update him on the blog comments by reading those of the past few days. I could be wrong and he doesn't hear me, but the worst that can happen is that I read out loud for a while!
Many thanks for your kind comments to Larry and our family. It is so touching to know that Larry affected so many people.
With love,
Terri and family
We had a bit of a rough patch around 2:30 this morning when the pain got ahead of the medication and it took nearly 3 hours to get it under control again. It happened again early this afternoon but they were able to get a handle on it much faster, thankfully. Since that time he has been sleeping comfortably.
Unless something extraordinary happens, I believe Larry's days of talking to us are over. I believe he still hears us and I talk to him quite a bit. In fact, tonight I will update him on the blog comments by reading those of the past few days. I could be wrong and he doesn't hear me, but the worst that can happen is that I read out loud for a while!
Many thanks for your kind comments to Larry and our family. It is so touching to know that Larry affected so many people.
With love,
Terri and family
Monday, April 21, 2008
Larry has, once again, baffled his doctor and nurses. We were told on Saturday morning that in just a day or two and he would be gone. However, he had a very interactive day on Saturday, talking and making a few jokes. It was almost like the old Larry was back, even for a brief time. I'm sure it spent his energy as he spent most of Sunday sleeping and today is much the same. We've been told that it is common for cancer patients to sometimes rally at the end, which may very well be what he has done. His vital signs took a negative turn last evening, but improved a bit during the night and remain fairly stable. It is amazing to me that a body so ravaged with this horrible disease can still be so strong and put up such a fight to live.
The decision was made just a few minutes ago to move him to Hospice Home in High Point. This move is scheduled for tomorrow morning and I believe Larry will be much more comfortable. The rooms are much the same as what we have now, except that he will be on the ground floor with access to a courtyard outside his room. He asked us yesterday if he could just look out a window so we moved his bed for him to see outside. It was a very nice day so we were able to open the window, too, and he commented on the birds singing. I believe he will find this move especially comforting since he will be able to not only see outside, but they are willing to move his bed outside for a short while.
Will update more following his move tomorrow.
Much love,
Terri and family
The decision was made just a few minutes ago to move him to Hospice Home in High Point. This move is scheduled for tomorrow morning and I believe Larry will be much more comfortable. The rooms are much the same as what we have now, except that he will be on the ground floor with access to a courtyard outside his room. He asked us yesterday if he could just look out a window so we moved his bed for him to see outside. It was a very nice day so we were able to open the window, too, and he commented on the birds singing. I believe he will find this move especially comforting since he will be able to not only see outside, but they are willing to move his bed outside for a short while.
Will update more following his move tomorrow.
Much love,
Terri and family
Friday, April 18, 2008
The doctors have made some adjustments with Larry's medications and he is resting very comfortably today. When he wakes up he is aware of who is around and mutters just a bit, but he seems to forget where he is and why. He wants to know when he's going home. He wants to see his house. It's so nice to finally see him resting peacefully with no signs of discomfort.
Ginger and I will read all the blog comments to him today. The doctor assures us that he hears what is said and we know he will find comfort in the love and support so many of you have shared.
Much love,
Terri and family
Ginger and I will read all the blog comments to him today. The doctor assures us that he hears what is said and we know he will find comfort in the love and support so many of you have shared.
Much love,
Terri and family
Wednesday, April 16, 2008
Larry continues to amaze me. There are probably 4-5 times throughout each day that I am certain he has taken his last breath, yet he rallies. He does realize he is dying, and makes very brief comments about this when the pain awakens him. In fact, just today he tried to make a deal with the nurses to let him out of bed. Each time he wakes up he asks to stand up, only to be told he's not strong enough and we can't let him out of bed. This afternoon he asked if he was dying. I frantically looked to his nurse for help in answering and she asked him what he thought. He replied that he thought so, and she told him he was right and that it would probably happen very soon. In typical Larry fashion he asked, "Then what can it hurt for me to stand up?" Needless to say, Larry stood up for a couple of minutes - with quite a bit of assistance - but he stood and loved it.
Larry's speech is not very clear and it takes quite a bit of concentration to make out what he's saying most of the time, but I cling to every word. I still believe that he hears all that is said and I talk about heaven a lot. Sometimes he nods, sometimes he raises his eyebrows, and sometimes he has no reaction at all, but that's okay. He knows that his children and I are ready for his journey, as are the others in our families. I can not begin to imagine what is keeping him here, but either he's not ready to leave or God's not ready to take him. Watching him suffer is a tough pill to swallow, but it is what it is and everything is in His timing - - like it or not!
Many have asked about the kids. I have been so proud of them. I know this is tough for them, but they are here just every day and they don't mind holding his hand and talking to him. His daughter has been in town with us as often as possible and I am certain she has been a great example for them. She is strong yet has no issues with showing grief over the whole situation. We have friends and relatives who have allowed the kids the talk and ask questions, which has been very helpful for them as well. We are so blessed.
We will spend another night by Larry's bedside, holding his hands and letting him know he is not alone. I still ask God to either heal him completely or take him, but not to continue allowing him to suffer.
Thanks so much for the comments. It is such a comfort to know that Larry touched the lives of so many.
Terri
Larry's speech is not very clear and it takes quite a bit of concentration to make out what he's saying most of the time, but I cling to every word. I still believe that he hears all that is said and I talk about heaven a lot. Sometimes he nods, sometimes he raises his eyebrows, and sometimes he has no reaction at all, but that's okay. He knows that his children and I are ready for his journey, as are the others in our families. I can not begin to imagine what is keeping him here, but either he's not ready to leave or God's not ready to take him. Watching him suffer is a tough pill to swallow, but it is what it is and everything is in His timing - - like it or not!
Many have asked about the kids. I have been so proud of them. I know this is tough for them, but they are here just every day and they don't mind holding his hand and talking to him. His daughter has been in town with us as often as possible and I am certain she has been a great example for them. She is strong yet has no issues with showing grief over the whole situation. We have friends and relatives who have allowed the kids the talk and ask questions, which has been very helpful for them as well. We are so blessed.
We will spend another night by Larry's bedside, holding his hands and letting him know he is not alone. I still ask God to either heal him completely or take him, but not to continue allowing him to suffer.
Thanks so much for the comments. It is such a comfort to know that Larry touched the lives of so many.
Terri
Monday, April 14, 2008
It has been a few rough days for Larry. Although most of his day is spent resting, he does utter a few words from time to time and when he is spoken to he tries his best to respond. This takes a great amount of energy from Larry. As time moves forward, Larry is becoming more agitated at small amounts of noise and it is becoming necessary to limit his visits to his immediate family. This is something that is extremely hard to do as I know Larry loves and appreciates all the visits from his friends.
I cannot express how appreciative we are of the love that has been shown during these rough times.
Please continue to pray for Larry that he will receive the peace and comfort that he needs. I also know that Larry would want you to specifically pray for Josh and Justin as they are so young and there are so many things that they do not understand.
Thank you again for all your love and prayers!
I cannot express how appreciative we are of the love that has been shown during these rough times.
Please continue to pray for Larry that he will receive the peace and comfort that he needs. I also know that Larry would want you to specifically pray for Josh and Justin as they are so young and there are so many things that they do not understand.
Thank you again for all your love and prayers!
Friday, April 11, 2008
It's the afternoon on Friday and althought he is still in a coma, he does hear what is being said. Larry is still surrounded by many loved ones and also being visited by those he works with. Larry even gave a little wave to his grand daughter and to one of his good friends at work. Although he is in and out he is fighting to respond and I think he feels he needs to entertain the folks that are with him.
Larry slipped into a coma during the early morning hours. It is difficult to see him this way, but he looks the most comfortable he's been in many, many weeks. All three of his children are here with us, as are his grandchildren, his parents, my parents, my sister and our nieces. He is certainly surrounded by those he loves and who love him beyond measure. Our time is spent talking to him, just in case he can hear us. He is not responsive, but you never know.
Please pray for a peaceful passage for him. Although he told me he did not want to leave his family, Larry is at peace and ready to pass.
Thanks to you all,
Terri
Please pray for a peaceful passage for him. Although he told me he did not want to leave his family, Larry is at peace and ready to pass.
Thanks to you all,
Terri
Tuesday, April 8, 2008
The weekend was painful for Larry. It is difficult for him to get comfortable, difficult for him to breathe, difficult for him to eat - - just a tough time all around. His orthopedic surgeon informed us yesterday that his leg is now completely broken, although it is still aligned properly. We've been a bit to lax about the brace that he's supposed to be wearing all the time, and didn't realize the severity of the situation and how much damage we could have done, so the doctor ordered him to bed yesterday due to the amount of swelling in his legs (the broken one is the worst). Needless to say, Larry did not take this well at all! He has not been in bed for nearly 3 weeks because it's painful and difficult for him to breathe in bed. He's been sleeping in a recliner instead, but this is no longer an option. I think just the fact that Larry was told he couldn't do something made him angry and determined to do just the opposite. Go figure, right?!?!? Anyway, he is spending more time in bed and the swelling has definitely decreased. Thank God!!
We still don't know when they plan to put in the pain pump, but hopefully by Friday. I know Larry will be relieved just not having to worry about the IV pole and stuff. I make him a nervous wreck whenever I move him or the IV pole because I get in a hurry and have nearly yanked the thing out of his arm several times. I won't even mention the worry I've caused with the catheter he has!! Suffice it to say that I've slowed down.
Please pray that Larry will be able to rest comfortably. It is so hard to see him in so much pain and nothing seems to help, short of the medications just knocking him out.
Thanks,
Terri
We still don't know when they plan to put in the pain pump, but hopefully by Friday. I know Larry will be relieved just not having to worry about the IV pole and stuff. I make him a nervous wreck whenever I move him or the IV pole because I get in a hurry and have nearly yanked the thing out of his arm several times. I won't even mention the worry I've caused with the catheter he has!! Suffice it to say that I've slowed down.
Please pray that Larry will be able to rest comfortably. It is so hard to see him in so much pain and nothing seems to help, short of the medications just knocking him out.
Thanks,
Terri
Saturday, April 5, 2008
After several rough days, Larry is more alert today and seems to be in less pain. He has had two fairly restful nights and we are so thankful for them! He does sleep most of the time, but with all the meds in his system I don't think there's much of an option for him.
I have requested a different pain method for Larry and I'm hoping that all of his doctors will agree when they confer Monday to put in an intrathecal pump. This is a catheter that is inserted in the lumbar spine, most likely, and will thread up through his spinal column into the thoracic spine. There will be a disc-type of container that will be just under the skin in his abdominal area that will hold the medication. Everyone I've talked to feels that this will be a very good option for Larry. This should allow him to come off of the IVs and lessen the amount of narcotics, yet they will be more effective with a smaller dosage. Having said all that, I will insert my "disclaimer" that this is my non-clinical explanation as I understand it!
I don't remember if I mentioned this previously, but they stopped Larry's chemo due to a drop in his white cell count. As of tonight the count is just about high enough to start the treatment again, so we're hoping for the go ahead to begin again the first of the week.
As I type this, Larry is sitting in his recliner in his hospital room watching Carolina vs. Kansas with my cousin, who will spend the night with him. We joke about all the sleepovers Larry's had while he's been up here - probably more than he had even as a child!! He has had several visitors this week and even though he doesn't always stay awake, he enjoys the visits.
Please continue to pray for rest, a sufficient increase in his white cell count, and that he does not pick up any kind of infection since it's been so low.
Thanks for caring,
Terri
I have requested a different pain method for Larry and I'm hoping that all of his doctors will agree when they confer Monday to put in an intrathecal pump. This is a catheter that is inserted in the lumbar spine, most likely, and will thread up through his spinal column into the thoracic spine. There will be a disc-type of container that will be just under the skin in his abdominal area that will hold the medication. Everyone I've talked to feels that this will be a very good option for Larry. This should allow him to come off of the IVs and lessen the amount of narcotics, yet they will be more effective with a smaller dosage. Having said all that, I will insert my "disclaimer" that this is my non-clinical explanation as I understand it!
I don't remember if I mentioned this previously, but they stopped Larry's chemo due to a drop in his white cell count. As of tonight the count is just about high enough to start the treatment again, so we're hoping for the go ahead to begin again the first of the week.
As I type this, Larry is sitting in his recliner in his hospital room watching Carolina vs. Kansas with my cousin, who will spend the night with him. We joke about all the sleepovers Larry's had while he's been up here - probably more than he had even as a child!! He has had several visitors this week and even though he doesn't always stay awake, he enjoys the visits.
Please continue to pray for rest, a sufficient increase in his white cell count, and that he does not pick up any kind of infection since it's been so low.
Thanks for caring,
Terri
Wednesday, April 2, 2008
The roller coaster ride continues. The weekend started out okay on Saturday, got a bit rough on Sunday, Monday was a great day, and it's gone downhill since then. We learned this morning that he needs to stay in the hospital for at least @ 10 more days and work with the physical therapists while the pain management doctors work to get his pain stabilized. Today was his first day with physical therapy and he took maybe 100 steps. He's been back in the room for just a few minutes and is exhausted and sleeping soundly. His radiation treatments began on his spine a couple of days ago and will continue through next Friday. We are hopeful that by radiating the vertebrae that received the kyphoplasty, there will be additional pain relief.
We are so blessed by the tremendous number of people who are praying for Larry and our family. I have to believe that we are all holding up as well as we are because God is answering the prayers. Please continue to pray for Larry. He gets so little sleep and I worry that between the pain and the exhaustion he may suffer emotionally, and he needs his emotional strength now more than ever.
Thanks so much,
Terri
We are so blessed by the tremendous number of people who are praying for Larry and our family. I have to believe that we are all holding up as well as we are because God is answering the prayers. Please continue to pray for Larry. He gets so little sleep and I worry that between the pain and the exhaustion he may suffer emotionally, and he needs his emotional strength now more than ever.
Thanks so much,
Terri
Friday, March 28, 2008
Larry has made a bit of progress, according to his oncologist earlier this morning. He is more alert and has backed off of his pain pump just a bit. We're still looking at a few days in the hospital to try and get him up and moving around while still controlling the pain.
He went downstairs for his radiation assessment earlier today and did amazingly well. They dosed him up a bit before taking him, which was a great thing to do, but even at that I was surprised at how well he tolerated the procedure. His radiation treatments begin on Monday and they will target his spine. This should help with pain, too.
Many ask if Larry is continuing his chemo, and he is. We have seen no obvious side effects from it so far and we are so thankful for that. It has been 2 weeks today since he started chemo, so I think they will evaluate him in a couple more weeks to see how things are progressing.
I'm sitting in Larry's room and he asked that I tell you all that he's had a couple of good days and he's thankful for them. He looks forward to a time when he can see everybody and get back in touch with you all. I read the entire blog to him today, along with all the comments, and he enjoyed it so much! He sends a big "Thank You" to all who have responded to the blog.
I can't remember if I've posted this before, but we have moved to Room 307. Calls can still be made directly to him by calling 336.822.7307.
Thanks!
Terri
He went downstairs for his radiation assessment earlier today and did amazingly well. They dosed him up a bit before taking him, which was a great thing to do, but even at that I was surprised at how well he tolerated the procedure. His radiation treatments begin on Monday and they will target his spine. This should help with pain, too.
Many ask if Larry is continuing his chemo, and he is. We have seen no obvious side effects from it so far and we are so thankful for that. It has been 2 weeks today since he started chemo, so I think they will evaluate him in a couple more weeks to see how things are progressing.
I'm sitting in Larry's room and he asked that I tell you all that he's had a couple of good days and he's thankful for them. He looks forward to a time when he can see everybody and get back in touch with you all. I read the entire blog to him today, along with all the comments, and he enjoyed it so much! He sends a big "Thank You" to all who have responded to the blog.
I can't remember if I've posted this before, but we have moved to Room 307. Calls can still be made directly to him by calling 336.822.7307.
Thanks!
Terri
Tuesday, March 25, 2008
I'm writing this from Larry's hospital room. He asked me to thank everyone for their thoughts and prayers. Larry had a pretty decent weekend, with his pain fairly comfortable. His pain increased significantly Sunday evening and they had to increase his meds to the point where he slept most of the day on Monday. His surgery started around 4pm and he wasn't back in his room until 8:30pm. It took quite a bit longer than I expected, but it went well. They were able to repair 4 of the fractured vertebra instead of the 3 that they had planned, which is great. His pain today seems to be less than it has been, and we are very thankful for that.
The issue now is the tremendous swelling in his abdomen. An ultrasound was ordered this morning and there was nothing indicating a problem, so they still believe that the narcotics are the cause of the sluggishness in his GI system and thereby the cause of the swelling. They are trying to decrease the pain meds in order to help his system to "wake up" and start moving again. This is a double edged sword in that one problem can be as big as the other, so they are working diligently with the anesthesiologists to get it all coordinated and worked out. At this point the Dr. doesn't see Larry going home as early as we had hoped - at least not until he is alert and the pain is controlled.
Larry is up and in his chair today and anxious for improvement now that the kyphoplasty is done. His attitude is better today, too, and we're very, very thankful for that!
Sorry for the delay in updating since last week. Hoping for a better week that allows for more time (and energy) to keep you all informed!
Thanks,
Terri
The issue now is the tremendous swelling in his abdomen. An ultrasound was ordered this morning and there was nothing indicating a problem, so they still believe that the narcotics are the cause of the sluggishness in his GI system and thereby the cause of the swelling. They are trying to decrease the pain meds in order to help his system to "wake up" and start moving again. This is a double edged sword in that one problem can be as big as the other, so they are working diligently with the anesthesiologists to get it all coordinated and worked out. At this point the Dr. doesn't see Larry going home as early as we had hoped - at least not until he is alert and the pain is controlled.
Larry is up and in his chair today and anxious for improvement now that the kyphoplasty is done. His attitude is better today, too, and we're very, very thankful for that!
Sorry for the delay in updating since last week. Hoping for a better week that allows for more time (and energy) to keep you all informed!
Thanks,
Terri
Thursday, March 20, 2008
Today was a very difficult day for Larry. Actually, for all of us. His pain is again nearly unbearable, so the anesthesiologist and neurosurgeon consulted and presented us with a new plan. We agreed for Larry to have an epidural that is supposed to manage the pain very well until his procedure on Monday. We were so optimistic that this would help him to rest and to allow for a nice weekend. It worked for a couple of hours and then the pain returned. The anesthesiologist, who is also Board Certified in Pain Management, came back and increased some meds, changed a couple of things and we're hoping that the changes will allow Larry to rest. For those of you who pray for him, please pray that he is comfortable enough to relax and get some sleep. I have to think that the lack of sleep is certainly not helping him - especially emotionally. It seems as though he is getting weary, so please continue praying for him.
Terri
Terri
Wednesday, March 19, 2008
A bit of progress was made today. A neurosurgeon talked to us about the compression fractures in his thoracic vertebra and explained how they affect the body. On Monday they will perform a surgical procedure called a kyphoplasty and that should give him nearly immediate relief from the pain. This procedure basically injects a bone cement into the compressed vertebra and restores the integrity of the vertebra. Larry has four compression fractures and the FDA only allows surgeons to repair three at a time, so he had another CT scan today so that they can make sure they are working on the three most damaged vertebra. It is not very invasive, for which we are very thankful. He was also measured for a body brace which is supposed to help provide upper body support. As you can imagine, with so much bone deterioration in the ribs and spine he has quite a bit of trouble standing or sitting upright and a brace should help considerably...at least until the chemo has more time to indicate some positive results.
He had to take Ativan today so that he could lie flat for the CT scan, and this is the medication that really makes him loopy. He woke up briefly for me to feed him dinner and kept insisting to Justin that he play a note on the instrument. We tried humming, singing, pretending that our voices were instruments and Justin finally picked up a cell phone and used a tone from it as the note from his instrument. Larry was so impressed and told Justin that if he kept practicing he would become an excellent musician (what a joke!), and then told Justin to give him the instrument and let him show him how to play it. Wow - Justin just froze and wasn't sure what to say! We played it off and Larry soon forgot it. Shortly afterwards Larry sat in his chair and began playing his imaginary clarinet - even blowing into it and he had perfect finger positions! We got the biggest kick out of it. The first time he took Ativan was a couple of weeks ago, and he sailed all around the world on a big ship. This time he was a musician. It's just so bizarre the way medications affect people, but we get such a kick out of Larry's adventures!
Larry is still in quite a bit of pain but he's such a trooper. This most recent experience has been a bit frightening for all of us but he somehow manages to rise above the fear and keep a positive attitude. Thanks again for all the calls, cards and prayers. I continue to hear from people all across the country who are praying for us and have Larry on their prayer lists. It is very humbling to be lifted in prayer by so many people.
Thank you all.
Terri
He had to take Ativan today so that he could lie flat for the CT scan, and this is the medication that really makes him loopy. He woke up briefly for me to feed him dinner and kept insisting to Justin that he play a note on the instrument. We tried humming, singing, pretending that our voices were instruments and Justin finally picked up a cell phone and used a tone from it as the note from his instrument. Larry was so impressed and told Justin that if he kept practicing he would become an excellent musician (what a joke!), and then told Justin to give him the instrument and let him show him how to play it. Wow - Justin just froze and wasn't sure what to say! We played it off and Larry soon forgot it. Shortly afterwards Larry sat in his chair and began playing his imaginary clarinet - even blowing into it and he had perfect finger positions! We got the biggest kick out of it. The first time he took Ativan was a couple of weeks ago, and he sailed all around the world on a big ship. This time he was a musician. It's just so bizarre the way medications affect people, but we get such a kick out of Larry's adventures!
Larry is still in quite a bit of pain but he's such a trooper. This most recent experience has been a bit frightening for all of us but he somehow manages to rise above the fear and keep a positive attitude. Thanks again for all the calls, cards and prayers. I continue to hear from people all across the country who are praying for us and have Larry on their prayer lists. It is very humbling to be lifted in prayer by so many people.
Thank you all.
Terri
Tuesday, March 18, 2008
Well, Larry's homecoming was very brief. He had a very restless, painful night last night and neither of us slept much at all. He was in such an incredible amount of pain this morning that I called his doctor and was told to bring him in. It didn't take long for them to decide to admit him again. Both of us are just baffled as to how he could feel so good at 5pm yesterday and hours later make such a turn for the worse. I have an unofficial report that there are some fractured thoracic vertebra, so I suppose that would account for the excruciating pain.
The good news is that he is where he needs to be and is receiving excellent care. Our hope is that he will be in the hospital for only 2-3 days, until they adjust his pain medications, and then he'll be home in time for the Easter holiday.
For those of you who call or visit, he is now in Room 301 and you can call him directly at 822.7301.
Thanks again for keeping him in your thoughts and prayers.
Terri
The good news is that he is where he needs to be and is receiving excellent care. Our hope is that he will be in the hospital for only 2-3 days, until they adjust his pain medications, and then he'll be home in time for the Easter holiday.
For those of you who call or visit, he is now in Room 301 and you can call him directly at 822.7301.
Thanks again for keeping him in your thoughts and prayers.
Terri
Monday, March 17, 2008
Saturday, March 15, 2008
Larry continues to improve! He started the chemo yesterday and I think that did more for him mentally than anything so far. He had a very deep, restful sleep for a little over 2 hours yesterday afternoon and we are very thankful for that. I think this was probably the best he's slept in about 4 months. He is more alert than he's been and has even been making some jokes.
We don't know yet how the chemo will affect him. The doctor tells us that 5% of people have no side effects, 5% have every side effect and everyone else falls somewhere in between. We'll just have to wait and see. I'm just praying that it doesn't make him very sick because it is so painful for him when he throws up.
We are still hopeful that he will be able to come home by Tuesday. It would be nice for him to be home before Easter, plus the boys will have some time out of school and I know he would like to spend that time with them.
Thank you again for the cards, phone calls and especially your prayers.
We don't know yet how the chemo will affect him. The doctor tells us that 5% of people have no side effects, 5% have every side effect and everyone else falls somewhere in between. We'll just have to wait and see. I'm just praying that it doesn't make him very sick because it is so painful for him when he throws up.
We are still hopeful that he will be able to come home by Tuesday. It would be nice for him to be home before Easter, plus the boys will have some time out of school and I know he would like to spend that time with them.
Thank you again for the cards, phone calls and especially your prayers.
Thursday, March 13, 2008
Larry has had a couple of good days now. Thank God!! We found out today that the pneumonia has cleared up enough to start the chemo on Friday, and we're all so relieved! He is still having quite a bit of pain and they are continuing to regulate that. He is off all of the IV's except the one for the antibiotic that they continue to administer. All of his pain meds are now oral and he's adjusting to them. They are trying to keep the pain at a minimum and at the same time try to keep him as alert as possible. It's nice to actually carry on a conversation with him now.
He asked me to thank all of you who have visited with him. He said he realizes it's not easy to sit with him since he continually drops off to sleep and it's often in the middle of something he's saying. I also appreciate the visits.
The plan is for Larry to come home sometime next week - hopefully by Tuesday. He's definitely better than he's been, and we're trusting that he will continue to improve.
He asked me to thank all of you who have visited with him. He said he realizes it's not easy to sit with him since he continually drops off to sleep and it's often in the middle of something he's saying. I also appreciate the visits.
The plan is for Larry to come home sometime next week - hopefully by Tuesday. He's definitely better than he's been, and we're trusting that he will continue to improve.
Tuesday, March 11, 2008
There was a bronchoscopy yesterday to try and determine what, if anything, is causing the cloudiness shown on the CT scan of Larry's lung and we're anxious for the results. We are very hopeful that there will be no signs of infection and the chemo can begin. Meanwhile, Larry is in a great deal of pain and they have him on quite a bit of pain medication. Josh and Justin are anxious for him to get home and feeling well enough to share some of his hallucinations with him! He is traveling extensively (mentally, anyway), and seems to travel by ship most of the time. We aren't making fun of him, but we have to find humor just to ease the tension.
We appreciate the phone calls and cards that he continues to receive. Most of all we are thankful for the prayers. Please continue!
We appreciate the phone calls and cards that he continues to receive. Most of all we are thankful for the prayers. Please continue!
Thursday, March 6, 2008
Latest news is that Larry will be in the hospital through Monday, at least. There is something new showing up on the x-rays of his lower lung area that wasn't there previously so a CT scan has been ordered to try and determine what it is. Could possibly be more infection or a collapsed lung. The bad news is that until this is diagnosed, the chemo is delayed again. We were so hopeful that he could get that treatment started as early as today. A pulmonologist is scheduled to see him this afternoon or tomorrow.
Please pray with us that there is no infection.
Please pray with us that there is no infection.
Wednesday, March 5, 2008
We may actually have a bit of a break - finally. We're hoping today for the approval to start the chemo as early as tomorrow. Once that starts, we should see gradual progress. They are still working to get his pain managed so that he can function normally, so he's still in the hospital. For those of you who really know Larry, you must know how much he hates being stuck in the same room for nearly 2 weeks! Last night he felt good enough to walk up and down the hall, which was good for him. He's having a bit of trouble with his left hand but we are seeing improvement there, too, over the last couple of days.
Larry's a fighter and wants things back to normal. I'm hopeful that he'll be home by this weekend.
Larry's a fighter and wants things back to normal. I'm hopeful that he'll be home by this weekend.
Saturday, March 1, 2008
There's been a bit of a set back. Larry was not able to come home Friday as expected because he's still in so much pain. They've put him on a pain pump, so we're hoping that will help. They've also had to put him on oxygen in order to help him breathe.
I woke up Friday with the flu so they will not let me visit him. The timing couldn't be worse. I'm getting all the information from my mom and Aunt Judy (don't know what we'd do without them!!). I speak with Larry numerous times throughout the day and night and he doesn't sound good, but I realize that the pain meds certainly affect that.
The good news is that the radiation treatments on his leg were finished up yesterday. They saw some new growth on the xrays and we're very thankful for that!
He will remain in the hospital throughout the weekend and then be re-evaluated on Monday.
Please continue praying that the chemo treatments can begin on Monday or Tuesday and we will have no further delays.
I woke up Friday with the flu so they will not let me visit him. The timing couldn't be worse. I'm getting all the information from my mom and Aunt Judy (don't know what we'd do without them!!). I speak with Larry numerous times throughout the day and night and he doesn't sound good, but I realize that the pain meds certainly affect that.
The good news is that the radiation treatments on his leg were finished up yesterday. They saw some new growth on the xrays and we're very thankful for that!
He will remain in the hospital throughout the weekend and then be re-evaluated on Monday.
Please continue praying that the chemo treatments can begin on Monday or Tuesday and we will have no further delays.
Thursday, February 28, 2008
Larry will remain in the hospital for another day - still trying to manage the pain. He's very anxious to get home but realizes how important it is to get everything straightened out with his pain control first. The last thing we want to do is spend another night in the E.R. We are very optimistic that the chemo will start the first of next week. The good news is that it appears the pneumonia is cleared up. They're still giving him the IV antibiotics, but the Dr. hears air moving through the lung now.
Wednesday, February 27, 2008
Tuesday, February 26, 2008
Larry's health
Thank you does not begin to express how much Larry, Josh, Justin and I appreciate the thoughts and prayers of so many. There are many versions of Larry's condition, but here is what we're dealing with. Please understand that I am not a clinician and all that I'm talking about is my understanding of what we've been told.
Larry has been diagnosed with Multiple Myeloma (MM). This is a type of cancer that is blood-born, and it's basically the white blood cells crowding out the red blood cells. The cancer was found when a chest x-ray was ordered to see if he had pneumonia. After spotting lesions on his spine, we met with our surgeon and a bone biopsy was ordered, confirming the type of cancer.
After having a lot of pain in his leg I called his regular M.D. to describe the pain and find out if there was concern for a blood clot. He asked us to come in the following a.m. to take a look at it. After examining his leg, it was advised that we have it x-rayed and wait for results to be called to him. Shortly after the x-ray I was called to the phone to hear that there was a large lesion on his lower leg (tibia). Our surgeon got us in with an orthopaedic Dr. who specializes in this, and he explained our options. We chose to immobilize Larry's leg and begin radiation on the lesion ASAP in order for it to heal faster, as surgery would have delayed radiation treatment. The next step was a meeting with the oncologist to learn about treatments. He then set us up to meet with the radiology oncologist to explain the radiation treatments. Fortunately, we were able to see him immediately after the oncologist. On our way out the door to meet with him, we were called back to the lab because Larry's hemoglobin was very low. While we were meeting in the radiology department, plans were underway to get Larry in for a couple units of blood. This was our first stay in the cancer center and it turned into an overnight stay for him. Just a precaution, I suppose. He came home the next morning.
The radiation treatment began the first of February and was scheduled to end on Feb. 15th. We were told many times to be very careful with his leg and not put any weight on it, as the bone was very fragile and could break very easily. Larry was very obedient and extremely careful, but the Wednesday before his last scheduled radiation treatment I had to call EMS because it seemed as though his leg was broken. After an x-ray in the E.R., the break in the tibia was confirmed. We were also disappointed to learn of another lesion in the femur. This means another 10-day regimen of radiation.
Our oncologist also ordered a bone marrow biopsy, which determines what stage the cancer is in. This helps to determine the best treatment for him, too. Larry's cancer is in Stage III. It is amazing to me that we completely missed any signs for the first two stages of this disease, but according to what I've read, there would not be anything very alarming that would make us think of cancer. We hear and read that this type of cancer responds well and is very sensitive to treatment. We're very anxious to get started.
Saturday, February 16th we were back in the E.R. with a cough that sounded too much like pneumonia, which is symptomatic of MM. After a short time we were told that he had bronchitis and we were given some antibiotics and sent on our way. Glad to be going home!
Larry felt much better for the next 4 days and worked every day. I encouraged him to stay home on Thursday and take care of his leg, which had begun to swell just a bit. In talking with him throughout the day I could tell that he didn't feel well, so when I got home I took his temp. and he had a fever. Called the Dr. and was advised to return to the E.R. for evaluation. Again, fear of pneumonia. Chest x-ray confirmed pneumonia and pleurisy. Lots of pain in neck and shoulders and a CT scan was ordered, which indicated more lesions in the cervical spine. At this point, Larry just felt so bad and totally overwhelmed with the rapid spread of the cancer. Again, reminder that it is "multiple". Larry was admitted that night and is still there as of tonight, February 26th. His pneumonia is better but the pain isn't controlled just yet. We're hoping he will be released tomorrow. He's very anxious to get home and get back to work ASAP.
Most days Larry will tell you that if it weren't for the cancer, he feels great! His spirits are good and he is optimistic that the cancer will respond to the chemo, once we get it started. It should have started last Friday, February 22nd, but the pneumonia was definitely a set-back. I understand it must be completely out of his system before the chemo can begin. The Dr. told me today that he will evaluate Larry again next week to let him know when the chemo can begin.
Many have asked how the boys are doing. For the most part, they are handling it well. There are a lot of questions, many of which I just don't have answers for. But they realize what is going on and that we have a battle in front of us. I hope and pray that we have raised them to be strong enough to face this with bravery, but most of all with faith. They are great young men and they both are very helpful to me and I find that they watch out for me during times when Larry is in the hospital. It's comforting and it makes me proud. At the same time, it hurts my heart that they have to go through this. I have said from the initial diagnosis, though, that there is something for all of us to learn through this experience. I pray that our eyes and minds are open to whatever that may be.
For those of you who pray for us, please pray that the pneumonia will be completely out of his body when he goes for his next appointment and that chemo can begin immediately. We both feel that the MM may stop spreading once that treatment begins.
Thanks!!
Larry has been diagnosed with Multiple Myeloma (MM). This is a type of cancer that is blood-born, and it's basically the white blood cells crowding out the red blood cells. The cancer was found when a chest x-ray was ordered to see if he had pneumonia. After spotting lesions on his spine, we met with our surgeon and a bone biopsy was ordered, confirming the type of cancer.
After having a lot of pain in his leg I called his regular M.D. to describe the pain and find out if there was concern for a blood clot. He asked us to come in the following a.m. to take a look at it. After examining his leg, it was advised that we have it x-rayed and wait for results to be called to him. Shortly after the x-ray I was called to the phone to hear that there was a large lesion on his lower leg (tibia). Our surgeon got us in with an orthopaedic Dr. who specializes in this, and he explained our options. We chose to immobilize Larry's leg and begin radiation on the lesion ASAP in order for it to heal faster, as surgery would have delayed radiation treatment. The next step was a meeting with the oncologist to learn about treatments. He then set us up to meet with the radiology oncologist to explain the radiation treatments. Fortunately, we were able to see him immediately after the oncologist. On our way out the door to meet with him, we were called back to the lab because Larry's hemoglobin was very low. While we were meeting in the radiology department, plans were underway to get Larry in for a couple units of blood. This was our first stay in the cancer center and it turned into an overnight stay for him. Just a precaution, I suppose. He came home the next morning.
The radiation treatment began the first of February and was scheduled to end on Feb. 15th. We were told many times to be very careful with his leg and not put any weight on it, as the bone was very fragile and could break very easily. Larry was very obedient and extremely careful, but the Wednesday before his last scheduled radiation treatment I had to call EMS because it seemed as though his leg was broken. After an x-ray in the E.R., the break in the tibia was confirmed. We were also disappointed to learn of another lesion in the femur. This means another 10-day regimen of radiation.
Our oncologist also ordered a bone marrow biopsy, which determines what stage the cancer is in. This helps to determine the best treatment for him, too. Larry's cancer is in Stage III. It is amazing to me that we completely missed any signs for the first two stages of this disease, but according to what I've read, there would not be anything very alarming that would make us think of cancer. We hear and read that this type of cancer responds well and is very sensitive to treatment. We're very anxious to get started.
Saturday, February 16th we were back in the E.R. with a cough that sounded too much like pneumonia, which is symptomatic of MM. After a short time we were told that he had bronchitis and we were given some antibiotics and sent on our way. Glad to be going home!
Larry felt much better for the next 4 days and worked every day. I encouraged him to stay home on Thursday and take care of his leg, which had begun to swell just a bit. In talking with him throughout the day I could tell that he didn't feel well, so when I got home I took his temp. and he had a fever. Called the Dr. and was advised to return to the E.R. for evaluation. Again, fear of pneumonia. Chest x-ray confirmed pneumonia and pleurisy. Lots of pain in neck and shoulders and a CT scan was ordered, which indicated more lesions in the cervical spine. At this point, Larry just felt so bad and totally overwhelmed with the rapid spread of the cancer. Again, reminder that it is "multiple". Larry was admitted that night and is still there as of tonight, February 26th. His pneumonia is better but the pain isn't controlled just yet. We're hoping he will be released tomorrow. He's very anxious to get home and get back to work ASAP.
Most days Larry will tell you that if it weren't for the cancer, he feels great! His spirits are good and he is optimistic that the cancer will respond to the chemo, once we get it started. It should have started last Friday, February 22nd, but the pneumonia was definitely a set-back. I understand it must be completely out of his system before the chemo can begin. The Dr. told me today that he will evaluate Larry again next week to let him know when the chemo can begin.
Many have asked how the boys are doing. For the most part, they are handling it well. There are a lot of questions, many of which I just don't have answers for. But they realize what is going on and that we have a battle in front of us. I hope and pray that we have raised them to be strong enough to face this with bravery, but most of all with faith. They are great young men and they both are very helpful to me and I find that they watch out for me during times when Larry is in the hospital. It's comforting and it makes me proud. At the same time, it hurts my heart that they have to go through this. I have said from the initial diagnosis, though, that there is something for all of us to learn through this experience. I pray that our eyes and minds are open to whatever that may be.
For those of you who pray for us, please pray that the pneumonia will be completely out of his body when he goes for his next appointment and that chemo can begin immediately. We both feel that the MM may stop spreading once that treatment begins.
Thanks!!
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